Debbie Schilling and Tom Bundy
Personal stories and various links for Rett Syndrome information.
International Rett Syndrome Association
Information about Rett Syndrome and the IRSA.
Rett Syndrome forum and online support group sharing personal stories and information.
Rett Syndrome Association (UK)
The Rett Syndrome Association UK, a registered charity, is dedicated to the support of girls and women, together with their families and carers, suffering from this complex neurological disorder, which affects them throughout their lives. Sufferers are profoundly and multiply disabled.
Rett Syndrome Research Foundation
Promotes biomedical research for the treatment of Rett Syndrome, often misdiagnosed as Autism and Hypotonia. Offers detailed information, links, studies, support groups, and information on the Rett Syndrome gene MECP2 recently discovered.
A family's battle with Rett Syndrome, plus help links and information.