American Syringomyelia Alliance Project
Information about ASAP and its goals, news, chiari manifestation, doctors corner and additional resources.
Chiari and Syringomyelia News
An on-line publication bringing the latest news, information, and research updates to the Chiari and syringomyelia community.
Corleen's Page
Personal account of having a daughter with Lissencephaly. Includes a mailing list.
Dandy-Walker Group for Adults and Teens
Forum to talk about life with Dandy Walker, including medical treatments, shunts, and having own children.
Information on SM/ACM
Information, stories, and support for people who have either Syringomyelia, Arnold Chiari Malformation or both. Includes a support forum.
The Lissencephaly Network
Information for the parents, siblings, physicians of children born with lissencephaly (smooth brain), and other neuron
|