Information about the organization that offers residential care for people with Prader-Willi Syndrome.
Prader-Willi Alliance of New York
Represents the interests of individuals in New York State with Prader-Willi syndrome, their families, and the professionals who provide services to the Prader-Willi population.
Prader-Willi Syndrome Association (USA)
Characteristics include hypotonia, insatiable appetite, obesity if food intake is uncontrolled, hypogonadism and incomplete sexual development, developmental delays, variable degrees of mental retardation or functional retardation, short stature (adult), small hands and feet, mild dysmorphology, and behavior problems which can be severe.
The Prader-Willi Alliance for Research
A non-profit group of volunteer families, friends and researchers aiming to raise funds for research into finding treatments for