CongenitalHeartDefects.com 
Information, resources and support for families and individuals dealing with congenital heart defects. Definitions of CHDs and medical terms, extensive list of support groups and hospitals.
Adult Congenital Heart Association
Information, resources and support for adults with congenital heart disease.
Canadian Adult Congenital Heart Network
Provides information for patients and physicians about the care of adults with congenital heart problems.
Congenital Heart Disease Information and Resources
Interactive forums, Internet links, and peer-reviewed informational materials for families, adults with CHD, and health professionals.
Heart Disease Online
A collection of articles on the different kinds of congenital heart defects, including their treatment by surgery, written in simple, non-technical language.
HLHS - Benjamin's Hope
A personal site dedicated to a son, and his fight against HLHS, hypoplastic left heart syndrome. A place to find hope and strength.
Imperfect Hearts
Includes interactive forums, Jara's story, and parent support.
International Society for Adult Congenital Cardiac Disease
The site offers resources for doctors and other health-care professionals in the field of ACHD and for ACHD patients. Visitors can search for ISACCD members.
MedicineNet
Detailed look at congenital heart disease, such as the causes, symptoms, types and treatments.
Miami Children's Hospital
Department of Cardiovascular Surgery provides a list of surgeries performed along with actual pictures and a lot of information about each. A form on-site to ask questions or give comments.
The Children's Heart Society
Information about this non-profit, volunteer based support group, dedicated to helping families affected by Congenital Heart Disease/Defects.
Vivian Lemke's HLHS Story
Hypoplastic Left Heart Syndrome (HLHS) information page and her life with her sister
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